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Welcome to Cystinosis Life !

Meet 4 young people who share with you their experiences and ideas on living with cystinosis. Discover how Kirsty, Irati, Mark and Geoffrey became who they are.

Kirsty à Londres

Kirsty in London

"Whatever your life is, there's a way to do most things you want to do, like 99% of the things, you just have to slightly adapt them..."

Irati in Bilbao

"Tomo la medicación y nunca la he abandonado porque si no la tomara no estaría aquí..."

Mark in Amsterdam

Mark in Amsterdam

"What I have been through the last 26 years makes me the person I am today..."

Geoffrey in Paris

Geoffrey in Paris

"La cystinose ce n'est absolument pas un blocage pour une vie amoureuse, il suffit juste de trouver... une personne assez intelligente pour comprendre... "

 

Learning everything you can about Nephropathic Cystinosis
will help you to better understand this condition.

Visit the knowledge center
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